There is Still - "NO CURE",... for "JUVENILE AUTO-IMMUNE ARTHRITIS" (Also known under many types such as,... Juvenile Idiopathic Arthritis, Systemic, Lupus, Psoriatic Arthritis, etc..... ) and with some types/children, the disease not only attacks their Joints, Bones, Muscles, Kidneys, Hearts, Lungs, etc,.... it also attacks their EYES as well,....known as "Uveitis". There are currently, Only Medicines to help "Slow" the joint damage, growth problems, sight problems, including blindness, skin, scalp & nail disorders, fatigue, pain, and emotional problems, including how they can seem-look "normal",... and people not knowing how they are suffering from this horrible disease. We need to find a cure!
Thank you to Everyone who helps raise awareness for Bailey & the 300,000 children,... "living" with any type of this horrible auto immune disease. These children didn't ask for this life that they were given,.... They just have to live it, - the best they can - With our help - And with God's Hand.
We SO MUCH appreciate the Doctors, (Pediatricians, Ped. Rheumatologists, Eye Specialist, etc...) Nurses, Dentists, Theapists, Lakeshore Staff who help keep her moving, and all.. who help with JIA & Uveitis!

Two of the Medicines Bailey has been on for 6 years now is Methotrexate (Chemotherapy drug-used at a smaller dose than cancer patients) We have to give her an injection of this medicine each week at home. Also, her Remicade IV Treatments are a Biologic Medicine made with a mouse protein and are extremely expensive. (The latest insurance EOB is billed at over $15,000.00 Each Treatment!!!) --No wonder Insurance Companies are trying to make these kids people try Cheaper drugs first,... Dangerously letting their disease Progress!!!!) So even WITH Blue Cross, or other expensive health insurance, this leaves a huge burden for families.
AND - of course, the Organiations who work "Daily" to "Raise Awareness, Funds and Research" to help find treatments, better medicines,... and strive for a CURE! Such as "The Arthritis National Research Foundation" in Long Beach CA, "The Arthritis Foundation", The EYE/UVEITIS Research Groups, The Many Many Various groups and people who help ad have helped spread the word & Baileys Video & Message, to raise awareness,.... and Of COURSE - The SPONSORS & SUPPORTERS of Juv Arth Research!!!! You may think your voice is small,.... but it is HUGE to families like us! Thank you for Speaking Out & Speaking Up!

NOW: The "Must See Video" & Other Videos & Links are below to the right, under "VIDEOS & Links"!

Wednesday, September 28, 2011

The Good & The Bad (Mobile, AL Overnight Trip to Dr.)

The GOOD & The BAD,.... (Mobile AL Overnight Trip)

WELL,..The Good: Bailey Loved seeing Dr. Weiser again! --- BAD NEWS: Our VAN DIED! Head gasket,. something Ran HOT, kept pulling off, Engine may be Gone! A friend came to pick us up @ an hour or so from home AND we had to have the Van TOWED Home - $235.00 ! SO----A FOUR hour drive to get home, from Mobile,..TOOK US about 10 Hrs! The kids went Right to Bed! lol! Now,.... Poor Van is sitting here again broke! (just had it fixed last month) Ugh.. Lots to do this week! Appts: Mon. (Mom to get Staples out of Knee from Surgery), Tues- is School Co Op, Wed.- Bailey's Eye appt, Thursday- Drive to Tuscaloosa for Bailey's infusion/Treatment there,..... UGHhhh!!.. WHY ?!?!?? Anyway - It will all work out! Look at her Smile! (More pics on Facebook Page)

Tuesday, September 20, 2011