Monday, February 27, 2012
SEE ANYONE FAMILIAR, IN THIS VIDEO, - TO "PRESIDENT OBAMA"???
http://www.arthritis.org/ask.php
(After Video - Please click on "ASK OBAMA" (Big Red Cloud over video clip) & send the form letter allready written out OR add your own info & Send,.... to help bring awareness & eventually Find A Cure for kids like Bailey! Its Quick, Free & Simple - Thank You!) Here is what I added to mine, if you just want to "Copy & Paste" it to the top of yours:
To Whom It May Concern:
**PLEASE,..... For 7 Yr. Old Hero, " BAILEY WARREN " Please make Juvenile Arthritis, AutoImmune Arthritis - ALL kinds of Arthritis - a National Priority, & to Help Find A CURE Quickly!!!!!
http://www.thewarrens-baileysmama.blogspot.com/
Thank You! FROM: Friends/Family of Bailey Warren, __(your name) _____________________________________________________________________________
******** Then you can check these out here: ***************
http://www.youtube.com/playlist?list=PL6E656963D5A88EB7&feature=plcp
(After Video - Please click on "ASK OBAMA" (Big Red Cloud over video clip) & send the form letter allready written out OR add your own info & Send,.... to help bring awareness & eventually Find A Cure for kids like Bailey! Its Quick, Free & Simple - Thank You!) Here is what I added to mine, if you just want to "Copy & Paste" it to the top of yours:
To Whom It May Concern:
**PLEASE,..... For 7 Yr. Old Hero, " BAILEY WARREN " Please make Juvenile Arthritis, AutoImmune Arthritis - ALL kinds of Arthritis - a National Priority, & to Help Find A CURE Quickly!!!!!
http://www.thewarrens-baileysmama.blogspot.com/
Thank You! FROM: Friends/Family of Bailey Warren, __(your name) _____________________________________________________________________________
******** Then you can check these out here: ***************
http://www.youtube.com/playlist?list=PL6E656963D5A88EB7&feature=plcp
Sunday, December 4, 2011
Update: .....5 Years Later & Counting-
(Note: Make sure you go to "OLDER POSTS" at the bottom of each page, for more Pictures & videos,... And the "MUST SEE VIDEO" is still on the LINK to the right here *******)
Bailey ----- Just turned 7 !!!!
Remicade Dose raised again ....
(highest we can go,.... may have to try another Biologic...)
Eyes flarred again, tapering Drops for next 4 weeks.
Psoriasis comes & goes,... aches seem to be getting worse - & spread out....
Bailey could just about start her own IV,...... She has had some good teachers!
Bailey ----- Just turned 7 !!!!
Remicade Dose raised again ....
(highest we can go,.... may have to try another Biologic...)
Eyes flarred again, tapering Drops for next 4 weeks.
Psoriasis comes & goes,... aches seem to be getting worse - & spread out....
Bailey could just about start her own IV,...... She has had some good teachers!
Wednesday, November 16, 2011
Here is what's New.....
After 2 weeks of "Walking Phneumonia" & 2 Antibiotics
then "resistent strep" 2 weeks & stronger Antibiotics
I Knew she was sick - she NEVER lays around in bed and
She was pale & weak.....Strange - Especially since she NEVER even had an Ear Infection!
1st Treatment back
in Birmingham....Yea!
Even holding her own blood ! ha ha
She was wearing down,.....
Sleepy....
Unhappy -- Eye Appt Monday,....
Even After this past treatment - I saw her -
Pupils were different size & had to wait
till Monday to get them checked, and... found out,
The Cells are Back, in the other eye now!
Hard to believe it started here
& Won't Go Away!
Saturday, October 1, 2011
Infusion Day (T-Town), Hair Curled & ALABAMA Jersey on, Ready to go! ROLL TIDE !
Bailey wanted her hair curled for the Treatment,.... And wanted to wear her ALABAMA Jersey... Got some Cute Pics!!! (After the drive in the heat, her curls were about gone).(Lots more of these cute pics on FaceBook Page).
Wednesday, September 28, 2011
The Good & The Bad (Mobile, AL Overnight Trip to Dr.)
The GOOD & The BAD,.... (Mobile AL Overnight Trip)
WELL,..The Good: Bailey Loved seeing Dr. Weiser again! --- BAD NEWS: Our VAN DIED! Head gasket,. something Ran HOT, kept pulling off, Engine may be Gone! A friend came to pick us up @ an hour or so from home AND we had to have the Van TOWED Home - $235.00 ! SO----A FOUR hour drive to get home, from Mobile,..TOOK US about 10 Hrs! The kids went Right to Bed! lol! Now,.... Poor Van is sitting here again broke! (just had it fixed last month) Ugh.. Lots to do this week! Appts: Mon. (Mom to get Staples out of Knee from Surgery), Tues- is School Co Op, Wed.- Bailey's Eye appt, Thursday- Drive to Tuscaloosa for Bailey's infusion/Treatment there,..... UGHhhh!!.. WHY ?!?!?? Anyway - It will all work out! Look at her Smile! (More pics on Facebook Page)
WELL,..The Good: Bailey Loved seeing Dr. Weiser again! --- BAD NEWS: Our VAN DIED! Head gasket,. something Ran HOT, kept pulling off, Engine may be Gone! A friend came to pick us up @ an hour or so from home AND we had to have the Van TOWED Home - $235.00 ! SO----A FOUR hour drive to get home, from Mobile,..TOOK US about 10 Hrs! The kids went Right to Bed! lol! Now,.... Poor Van is sitting here again broke! (just had it fixed last month) Ugh.. Lots to do this week! Appts: Mon. (Mom to get Staples out of Knee from Surgery), Tues- is School Co Op, Wed.- Bailey's Eye appt, Thursday- Drive to Tuscaloosa for Bailey's infusion/Treatment there,..... UGHhhh!!.. WHY ?!?!?? Anyway - It will all work out! Look at her Smile! (More pics on Facebook Page)
Tuesday, September 20, 2011
Tuesday, May 17, 2011
UPDATE: Cells are Back in the Right Eye !!!!!!!
Not a good day! Had to skip the Remicade Infusion last Wed due to a light cough & red throat (although Bailey didnt complain at all or seem sick),... SO due to go today but had eyes checked yesterday first...... Good thing we did. Cells in the right eye are Plus2/Plus3 (Ratings for amount of cells....). SO,.... Back on the PredForte Steroid Eye Drops EVERY HOUR (16 a day) and the Dilating Drops 4 times a day as well. Cough has gotten a little worse this week, but not bad like when she has had a cold or sinus infection, etc,.... Strange! BUT, cant take a chance with the Remicade suppressing her immune system more now,... so Waiting to hear from the Dr in Tuscaloosa to tell us to come down or wait another week...... In the Past EYES were flarring after Remicades were stretched out to 8 weeks,.... this time its only been 5 weeks. Been sick on my stomach since yesterday,.... is this where it gets tougher for her...... I HOPE NOT!!!!!! We have felt blessed because we hear of so many Horry stories of Kids all around the states that seem worse & have phnuemonia several times,... surgeries,.... But Now am wondering - Is this Our time???? Praying that its Not!!!!!!
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