Warren Family - Baileys Blog "The Little Hero!"

Update: .....5 Years Later & Counting-

2011-12-04T21:55:00.000-08:00

(Note: Make sure you go to "OLDER POSTS" at the bottom of each page, for more Pictures & videos,... And the "MUST SEE VIDEO" is still on the LINK to the right here *******)

Bailey ----- Just turned 7 !!!!

Remicade Dose raised again ....
(highest we can go,.... may have to try another Biologic...)
Eyes flarred again, tapering Drops for next 4 weeks.
Psoriasis comes & goes,... aches seem to be getting worse - & spread out....

Bailey could just about start her own IV,...... She has had some good teachers!

Here is what's New.....

2011-11-16T00:20:00.000-08:00

After 2 weeks of "Walking Phneumonia" & 2 Antibiotics
then "resistent strep" 2 weeks & stronger Antibiotics
I Knew she was sick - she NEVER lays around in bed and
She was pale & weak.....Strange - Especially since she NEVER even had an Ear Infection!

1st Treatment back
in Birmingham....Yea!

Even holding her own blood ! ha ha

She was wearing down,.....
Sleepy....

Unhappy -- Eye Appt Monday,....
Even After this past treatment - I saw her -
Pupils were different size & had to wait
till Monday to get them checked, and... found out,
The Cells are Back, in the other eye now!

Hard to believe it started here
& Won't Go Away!

Infusion Day (T-Town), Hair Curled & ALABAMA Jersey on, Ready to go! ROLL TIDE !

2011-10-01T00:38:00.000-07:00

Bailey wanted her hair curled for the Treatment,.... And wanted to wear her ALABAMA Jersey... Got some Cute Pics!!! (After the drive in the heat, her curls were about gone).(Lots more of these cute pics on FaceBook Page).

The Good & The Bad (Mobile, AL Overnight Trip to Dr.)

2011-09-28T23:19:00.000-07:00

The GOOD & The BAD,.... (Mobile AL Overnight Trip)

WELL,..The Good: Bailey Loved seeing Dr. Weiser again! --- BAD NEWS: Our VAN DIED! Head gasket,. something Ran HOT, kept pulling off, Engine may be Gone! A friend came to pick us up @ an hour or so from home AND we had to have the Van TOWED Home - $235.00 ! SO----A FOUR hour drive to get home, from Mobile,..TOOK US about 10 Hrs! The kids went Right to Bed! lol! Now,.... Poor Van is sitting here again broke! (just had it fixed last month) Ugh.. Lots to do this week! Appts: Mon. (Mom to get Staples out of Knee from Surgery), Tues- is School Co Op, Wed.- Bailey's Eye appt, Thursday- Drive to Tuscaloosa for Bailey's infusion/Treatment there,..... UGHhhh!!.. WHY ?!?!?? Anyway - It will all work out! Look at her Smile! (More pics on Facebook Page)

Some Recent Photos of Bailey - Couldn't pick just one!

2011-09-20T15:11:00.000-07:00

A picture slideshow by Smilebox

UPDATE: Cells are Back in the Right Eye !!!!!!!

2011-05-17T22:29:00.000-07:00

Not a good day! Had to skip the Remicade Infusion last Wed due to a light cough & red throat (although Bailey didnt complain at all or seem sick),... SO due to go today but had eyes checked yesterday first...... Good thing we did. Cells in the right eye are Plus2/Plus3 (Ratings for amount of cells....). SO,.... Back on the PredForte Steroid Eye Drops EVERY HOUR (16 a day) and the Dilating Drops 4 times a day as well. Cough has gotten a little worse this week, but not bad like when she has had a cold or sinus infection, etc,.... Strange! BUT, cant take a chance with the Remicade suppressing her immune system more now,... so Waiting to hear from the Dr in Tuscaloosa to tell us to come down or wait another week...... In the Past EYES were flarring after Remicades were stretched out to 8 weeks,.... this time its only been 5 weeks. Been sick on my stomach since yesterday,.... is this where it gets tougher for her...... I HOPE NOT!!!!!! We have felt blessed because we hear of so many Horry stories of Kids all around the states that seem worse & have phnuemonia several times,... surgeries,.... But Now am wondering - Is this Our time???? Praying that its Not!!!!!!

Tornado damage, Tuscaloosa Treatment & Donation Spls for Storm Victims

2011-05-17T22:19:00.000-07:00

So,.... after seeing the destruction in Tuscaloosa today, I was driving in traffic & saying, "Lord, what can we do,... what do You want us to do?" And I came upon a Nat Guard station handing out Tarps,... I pulled in to see if they were giving them to diferent city's, or just there,... I told them where we were from & how the church is helping others,... They said, "Pull up, we'll get you 5!" So great,,.... then they asked what else we needed for Victims..... I mentioned Flashlights, underwear, etc,... They gave me a paper & address & said go there. I found it & as they guided us through, it seemed like more of a "Each person just gets 1 of what THEY need type thing,... I told them nevermind, we didnt want to take from the victims there,.... They said NO. We see you're trying to help other victims & - Just park over there!,... SO, Bailey was kinda droggy still from treatment, but we did & lady met us, told her where we were from & what our community needed to help others,... She loaded us up with Underwear, Flashlights, batteries, gloves, Bug Sprays, Shampoos, Soaps, toothbrushes, toothpastes,,...... We made several trips to the van & didnt think she was ever gonna stop! LOL! What a blessing!!!! She said, "Well, we havent had many people here & the ones who dont have cars to come cant get it either & thats why she was happy to hear how Christway Church has been going OUT to the Victims to help! Otherwise, they can't get what they need & all these supplies stay in a warehouse! Which they don't want! SO,.... Big delivery to Christway coming! LOL! OH,.... the sweetest thing is, the lady gave Bailey a New Barbie doll also while we were there! I had been explaining to Bailey lately of how God has Blessed us with so much & our home wasnt destroyed like many others, so we needed to give back & help however we could so we could be a blessing to others...... Well, just a minute ago she was going to bed (yea 2:25 AM!) and she got her doll & said "I'm so glad I got a Blessing today too". LOL! After her day - She deserved it! What a trooper!

The Bad & the Good,.... Tornado destroys / Dance Restores

2011-05-04T11:53:00.000-07:00

On the way home from Mobile (meeting Kristy), the Storm/Tornado ripped through our City & surrounding others. Our friends & family are dealing with loss & cleanup, but we are blessed in that our home was fine. We lost power for a few days & food in the Refrig & freezer,... but Nothing in compare to what others here have lost, including lives. But in this horrible loss, Bailey still had a ray of sunshine,... her 1st Dance Recital! She has been able to attend dance class at the Childrens Dance Foundation this past year & has loved it! It is a true JOY for her to go to Ms Mary's Class every Wednesday!!!! This keeps her Body moving & we like that! This Auto-Immune form of Arthritis & Uveitis may slow her down,... but it doesnt keep her from Dance! Her first Recital this past week was such fun for her,... and us!
We will be driving, about an hour, into another Tornado Destructon Zone (Tuscaloosa, AL), tomorrow, to begin her Treatments there. Please keep all of these storm victims in your prayers!

Kristy McPherson & Arthritis National Research Found. Fighting for kids with Juv Idiopathic Arthritis!

2011-05-04T11:14:00.000-07:00

Thank you ANRF,Kristy and ALL who were involved in making this a Great day for Bailey& Helping to raise awareness for this horrible disease! More Pics & info to come!!!!

Bailey getting IV started & telling us about her Red, Blue & YELLOW Veins! ha ha

2011-04-05T23:43:00.000-07:00

Big Girl! 4 yrs later & still keeps us smiling!

2010-07-04T14:33:00.000-07:00

Still on weekly Methotrexate shots and Remicade Infusions. She is having more aches & pains now. Uveitis seems to flare when we get to the 8 week mark each time,... so we start over & are trying to find the right Maintenance Dose for her.

THE 3 MINUTE VIDEO-Also on "You Tube" ( Hit Play & make sure your volume is up! ****** Also, Remember - there are lots more pages at the bottom!)

2009-06-26T07:52:00.000-07:00

New From The Arthritis National Research Foundation -

NEW SLIDESHOW OF EYE APPT & TREATMENT THIS WEEK:

Make a Smilebox slideshow

Some of Bailey's Dr's (Click on them to enlarge - and Baileys Loves the Jonas Bros! & then Autographed Pics from the AL Crew!!)

2009-05-08T21:36:00.000-07:00

Camp M.A.S.H. - Bailey Had a Great Time! (More Pics to come!)

The Treatment Crew!

New Video Footage of Bailey Getting IV Treatment started - Being a BIG Girl!!!!

Make a Smilebox slideshow

We didn't get to talk to everyone at the Walk Saturday, But we want EVERYONE to know how very much we appreciate your support! It touched our Hearts to see everyone there! We know you could have been anywhere else, but you were there with us! You'll Never know what it has meant to us!

For the WALK: Wear a White Shirt & We'll bring Purple Bandanas!

2009-04-28T12:42:00.000-07:00

Since we dont have a team Sponsor to buy T-Shirts this year, We are going to just wear a White Shirt (any kind) and We will buy some Purple Bandanas to wear (Since Purple is Bailey's Favorite Color right now!) You can wear them wherever you want (hair, neck, arm, etc....). Cant wait to see you all!!!!!!!!!!

Slideshow of this Past Year (Remember - "MUST SEE VIDEO" is on down the Page. Says "I.V. & Bloodwork".... )

2009-04-02T20:34:00.000-07:00

Make a Smilebox slideshow

Regions Bank (Bailey telling Mom what to say!)

2009-04-02T19:46:00.000-07:00

Arthritis Kick Off Luncheon

2009-04-02T19:31:00.000-07:00

Bailey - MUST SEE VIDEO !!!! (hit play button below) MUST WATCH THIS ONE !!!!!!!!!

2008-04-15T10:05:00.000-07:00

2008-04-15T08:12:00.000-07:00

IF VIDEO DOESN"T START (Having some problems with Blogger) Go to You Tube:
http://www.youtube.com/watch?v=EVr9dkGq650

2008 JA Conference, Costa Mesa CA (Video after Pictures)

2008-03-16T21:10:00.000-07:00

Bailey with Dr. Atkinson at the 2008 JA Conference in Costa Mesa, CA

Make a slideshow - it's easy!

Arthritis Walk & Bailey turning in some Donation Money

2008-03-06T12:50:00.000-08:00

http://smilebox.com/playEmail/4d6a63784d44497a4f4877314e5467324f446b340d0a&sb=1

Double-click the above link to view a CUTE Slideshow created by Big Sister Whitney, for Bailey!!!!!!!

Picking Flowers

2008-03-04T12:09:00.000-08:00

New Infusion Clinic was nice. Bailey hates to get the I.V. in, but once thats done, shes all smiles again & laughing as usual! Got a few more stickers also. Next eye appt is in 2 weeks - hopefully still clear!

Remicade Infusion - New Park Place Clinic

2008-03-04T12:06:00.000-08:00

Remicade Infusion - March 4 2008

2008-03-04T12:01:00.000-08:00

Last Week - Most Recent Treatments

2008-01-18T22:23:00.000-08:00

First Treatment (pril 2006) My HERO !!!!

2008-01-18T22:15:00.000-08:00

J..A SATURDAY w/ Dr. Cron & Family

2008-01-18T22:09:00.000-08:00

JRA Conference - Hershey, PA 2007

2008-01-18T21:58:00.000-08:00

1st visit to Childrens Hospital - Knee Surgery (April '06)

2008-01-18T21:50:00.000-08:00

When all this " J.R.A. " began!

2008-01-18T21:30:00.000-08:00

Knee Injection Today

2008-01-15T22:14:00.000-08:00

Remicade Done - Going Home

2008-01-15T22:04:00.000-08:00

Remicade Treatment at Childrens Hospital

2008-01-15T21:59:00.000-08:00

After the Eye Doctor Appt

2008-01-15T21:53:00.000-08:00

My Girls !!!!! (Whitney, Taylor & Bailey)

2008-01-15T21:48:00.000-08:00

Christmas in VA 07

2008-01-15T21:40:00.000-08:00

Say " Cheese " !!!!!

2007-12-15T19:44:00.000-08:00

Trying to get a Christmas Card Picture !

2007-12-15T19:40:00.000-08:00

Trying to get a Picture for Christmas Cards !

2007-12-15T19:35:00.000-08:00

Getting Ready to go Shopping

2007-12-15T19:32:00.000-08:00

At the Mall !

2007-12-15T19:29:00.000-08:00

Still Not Crazy about Santa!!!

2007-12-15T19:26:00.000-08:00

Visit with Tootsie

2007-12-15T18:55:00.000-08:00

At the Mall - Riding Reindeer & doing a little shopping!

2007-11-27T14:17:00.000-08:00

At the Doctors Office for Check Up!

2007-11-27T14:06:00.000-08:00

Bailey - Not to sure about Santa this year

2007-11-22T16:41:00.000-08:00

Lilyanna & Santa

2007-11-22T16:39:00.000-08:00

2007-11-22T16:38:00.000-08:00

2007-11-22T16:35:00.000-08:00

Bailey with her "My Daddy Can Fix Anything" shirt

2007-11-22T16:32:00.000-08:00

Gingerbread House w/ Pooping reindeer !

2007-11-22T16:29:00.000-08:00

Whitney & Gail's Gingerbread House

2007-11-22T16:24:00.000-08:00

"Tornado Bailey" hit this house!

2007-11-22T16:20:00.000-08:00

I'm 3 !!!!!!!!!!

2007-11-19T21:03:00.000-08:00

Yummmmmmmmmmm!

2007-11-19T21:01:00.000-08:00

2007-11-19T20:53:00.000-08:00

2007-11-19T20:48:00.000-08:00

Bailey's Birthday !!!!

2007-11-19T20:46:00.000-08:00

2007-11-19T20:44:00.000-08:00

Happy Birthday!

2007-11-19T20:41:00.000-08:00

My Little Pony !

2007-11-19T20:38:00.000-08:00

2007-11-19T20:34:00.000-08:00

Money, Money, Money !

2007-11-19T20:31:00.000-08:00

Cake & Money !!!!

2007-11-19T20:25:00.000-08:00

2007-11-19T20:20:00.000-08:00

2007-11-19T20:02:00.000-08:00

Eyes Clear - No Cells !!!! Yea !!!!!

2007-11-15T19:54:00.000-08:00

Getting Checked in

2007-11-15T19:51:00.000-08:00

Numbing Cream on arms,...Waiting for I.V.

2007-11-15T19:44:00.000-08:00

Look at my new glasses - Nurse Gave them to me!

2007-11-15T19:41:00.000-08:00

NOT HAPPY !!!!

2007-11-15T19:37:00.000-08:00

Trying to escape ?!?!

2007-11-15T19:34:00.000-08:00

Remicade Treatment done - Going Home !

2007-11-15T19:29:00.000-08:00

Going Home!

2007-11-15T19:25:00.000-08:00

Eye Doctor

2007-11-15T19:19:00.000-08:00

2007-11-15T19:16:00.000-08:00

Baking Cookies !

2007-11-15T19:06:00.000-08:00

WOW !!!!!!!!!!!!!!!

2007-11-12T18:31:00.000-08:00

Just Kicking Back with the Dogs !

2007-11-12T18:30:00.000-08:00

Bailey & Kelty & Sierra

2007-11-12T18:26:00.000-08:00

2007-11-12T18:21:00.000-08:00

2007-11-12T18:19:00.000-08:00

2007-11-12T18:15:00.000-08:00

2007-11-12T18:06:00.000-08:00

2007-11-12T17:59:00.000-08:00

Ready for Halloween

2007-11-01T07:06:00.000-07:00

Whitney & Kara getting ready

2007-11-01T07:05:00.000-07:00

Halloween Night

2007-11-01T07:02:00.000-07:00

Riding in style around the neighborhood

2007-11-01T07:00:00.000-07:00

trick or treating

2007-11-01T06:56:00.000-07:00

trick or treat

2007-11-01T06:37:00.000-07:00

Sierra, Bailey and Kelti wore out

2007-10-29T06:59:00.000-07:00

The Girls

2007-10-29T06:56:00.000-07:00

Pouting when we had to leave

2007-10-29T06:53:00.000-07:00

Dancing with the Cloggers

2007-10-29T06:50:00.000-07:00

Scarecrow had a wreck

2007-10-29T06:49:00.000-07:00

Forget the Circle - She danced in the middle

2007-10-29T06:47:00.000-07:00

Thinking about Dancing

2007-10-29T06:46:00.000-07:00

2007-10-29T06:35:00.000-07:00

Aldridge Gardens

2007-10-29T06:27:00.000-07:00